Our Mission

* Educate healthcare professionals

* Establish a clinic for FTD sufferers

* Support research

Wednesday, March 11, 2009

Busy Couple of Weeks

I have been so busy lately, I haven’t been blogging. I quit work for a year and a half to spend time with my mother. After loosing 2 children to FTD, she was pretty down, so when she asked me to quit work and hang with her, I did. It was weird at first, not getting up and taking off to the office. The oddest thing was not having my TREO attached to my ear. It has been a good time, but it is time for me to get back to it.

After all this time off (I haven’t not worked since I was about 14 years old), I am challenged just getting myself organized. I like everything in its place and a place for everything. I now realize that is a skill and I haven’t been practicing it for some time.

I am back to work selling real estate. The market is healthy here in the mountains, people still buying and selling….so that is good.

Mom and I travel to Colorado the end of the month to participate in the filming of "Planning For Hope". I hope our participation is helpful. More people need to speak out about FTD.

I remember in the 70's, you never said “Cancer” out loud, you would just say "the C word" if you said anything at all. Now we wear pink ribbons and run in marathons to honor family and friends with Cancer.

Then in the 80's you never admitted you had a family member with Alzheimer's. My how times change. And now Alzheimer’s Association is one of the most powerful organizations in the world.

I hope people realize it is important to talk about Frontotemporal Dementia. It helped me to learn more about it. I now understand my brother and sister were not weird crazy individuals as they got older, they were ill. We had no history of this disease; it just seemed to pop up. There is so much to learn.

I am so glad to know Susan Grant, she is living with FTD….she gives me hope for future generations.

1 comment:

DeeDee said...

I'd love to hear how the film goes when you and your Mom attend. Thanks for doing that. It is a film, right?