Our Mission

* Educate healthcare professionals

* Establish a clinic for FTD sufferers

* Support research

Saturday, March 28, 2009

Moving the Blog

My nephew Chris helped me move this blog over to http://www.FTDEDUCATION.COM Trying to make it more professional looking. Have alot planned once we get moved and have time.


Until then, I need to figure out how to move Followers over....to the new site. YIKES, still working on that one.

Stay with me......

Saturday, March 14, 2009

Thinking about Patsy

This is post I put on FTD Support Forum:

Was thinking about my sister today and how she took up painting, sculpting and drawing when she was older. Her work was so beautiful in the early years and then as the disease was taking over, it became dark and then she couldn't draw or paint the last 5 years of her life.

Her first painting was a small painting of a flower the day her son was born. Then she didn't do anything for years. When she went back to college later in life, she got her degree and then took a art course for fun. She created some beautiful watercolors, they were my favorite.

She saw art in life and then went home and transferred it to canvas or clay. Just before she lost the use of her hands, she tried to draw for me. I wanted a picture to compliment one she had done earlier. She was not able to draw well so she just set it aside and never went back to it.

She had stages of art; watercolor, oil, charcoal, cartoons, cow pies, hearts, bears, trees, 3D art, etc etc....I almost forgot her photography. She did it too. She won a contest with one photo she took of her daughter.

I miss those stages now that they are no longer coming......

Wednesday, March 11, 2009

Busy Couple of Weeks

I have been so busy lately, I haven’t been blogging. I quit work for a year and a half to spend time with my mother. After loosing 2 children to FTD, she was pretty down, so when she asked me to quit work and hang with her, I did. It was weird at first, not getting up and taking off to the office. The oddest thing was not having my TREO attached to my ear. It has been a good time, but it is time for me to get back to it.

After all this time off (I haven’t not worked since I was about 14 years old), I am challenged just getting myself organized. I like everything in its place and a place for everything. I now realize that is a skill and I haven’t been practicing it for some time.

I am back to work selling real estate. The market is healthy here in the mountains, people still buying and selling….so that is good.

Mom and I travel to Colorado the end of the month to participate in the filming of "Planning For Hope". I hope our participation is helpful. More people need to speak out about FTD.

I remember in the 70's, you never said “Cancer” out loud, you would just say "the C word" if you said anything at all. Now we wear pink ribbons and run in marathons to honor family and friends with Cancer.

Then in the 80's you never admitted you had a family member with Alzheimer's. My how times change. And now Alzheimer’s Association is one of the most powerful organizations in the world.

I hope people realize it is important to talk about Frontotemporal Dementia. It helped me to learn more about it. I now understand my brother and sister were not weird crazy individuals as they got older, they were ill. We had no history of this disease; it just seemed to pop up. There is so much to learn.

I am so glad to know Susan Grant, she is living with FTD….she gives me hope for future generations.