Our Mission

* Educate healthcare professionals



* Establish a clinic for FTD sufferers



* Support research





Thursday, January 15, 2009

Meetings at Baylor College of Medicine

We toured Baylor College of Medicine's Research Laboratory where they are actively seeking answers for FTD. Incredible people doing incredible work.

Also heard brief presentations from the Researchers, outlining what they are working on. These people are not just Researchers, they are compassionate people wanting desperately to find answers. Realizing they are on the forefront of this disease, they understand there remains much to do.

I want to thank Dr. Paul Schulz, Neurologist, Dr. Michelle York, Neuropsychologist, Dr. Qureshi, Neuropsychiatry, Dr. Lai, Director of Parkinson’s Center, and Linda Richardson, Founder of ALS Houston Chapter and Clinic. There are many more to thank….the researchers, but I don’t know them all by name.

Dr. Schulz was my sister's doctor. Dr. Schulz and his team helped our family understand what was happening as the FTD progressed. Had it not been for BCM and these caring doctors, my sister could have passed away before we knew what was going on. They helped us to understand why she behaved like she did.

When the brain is involved, we tend to shy away from what is going on...you can't see it, surely drugs can help?? ...this family knows all the scenarios.

We need to help them raise money to start FTD Clinics...a great concept to help patients and families dealing with this dreaded disease.

3 comments:

DeeDee said...

Hi! Thanks for the update on your tour of Baylor. I was thinking yesterday that I would like to run a marathon for Frontotemporal dementia research. But, in order to do so, I have to figure out what and where I would donate to. Is it a specific office, etc?

Leigh Anderson said...

Hi, Just found your blog. My Dad has FTD and Dr. Schulz is his doctor and has been since 2005 I think. It was Dr. Schulz that diagnosed him. I agree that the man and his staff are a godsend! I don't know what we would have done without them. I feel lucky to live in Houston for this reason.

Terri said...

Leigh,
We hope to be setting up a support group as well as a clinic there in Houston. I am collecting peoples names that might be interested in participating (in what ever ways possible) in the future. Let me know if you want to hear more about it all. Thanks for the note. I just love that group, they meant so much to our family.