The documentary is completed. The premier will be in Colorado Springs, CO on May 14th. Susan and Cindy are planning a Black Tie dinner and showing. Mom, Sarah and I will all be there.
Some incredible families have participated to help make this happen. There are also medical and research professionals providing their insight.
We hope this film makes it to mainstream media so we can educate the general public. Way too many people continue to be misdiagnosed due to lack of information.