Moving Forward

Well it has been some time since I was last blogging about our activities. It is hard to believe in just the last few months, our organization has secured an office, produced a charity golf tournament, and hosted a program about FTD for Mind Science Foundation in San Antonio.

It has taken some time to get here, but it is all falling into place.

It is so rewarding when you attend a seminar and doctors come up to you and thank you for making a program like this available. WOW pretty awesome.

We have a long way to go. So much to do...so we will keep pushing forward thanks to so many friends and family.

Everyone that has given money to this organization have help to make this happen. YOU ARE SO APPRECIATED and you are helping to make a difference.

Today would have been my sister Patsy's 62 birthday...still hard for me to believe she passed away at 55 years. So young. I am older than that now.

Thank you all for your emotional and financial support to make this happen.

I plan to get back to blogging...to share my stories and other family stories. Please if you have something to share, share it.

Going Full Time

Beginning August 1, I will be working full time for Frontotemporal Disease Association. It is a Texas based non profit organization dedicated to educating healthcare professionals and raising research dollars for neurodegenerative diseases.

Our first event was in 2009, we had a table at the Mind Science Foundation meeting "Bursts of Creativity with FTD" in San Antonio. Dr. Bruce Miller from University of California in San Franscisco was there. It was a great event.

Our second official event was the premier of the documentary "Planning For Hope" in Colorado Springs with Dr. Paul Schulz and Dr. Sara Qualls as special speakers for the evening. The silent auction was a big success. Dr. Schultz purchased Patsy's SHOWGIRL on canvas for his new office.

Our third event is arranging for Dr. Schulz to participate in the Texas Society of Psychiatric Physicians annual meeting this fall.

Frontotemporal Disease Association off and running

Paul Schulz, MD, Department of Neurology, Baylor College of Medicine is now set to speak in Colorado Springs on May 14th at the premier of the documentary "Planning For Hope".

Dr. Schulz, is also scheduled to speak to the Texas Society of Psychiatric Physicians Annual Scientific Program on November 13th in San Antonio.

It is a great reward to think he will be sharing his wisdom about FTD with medical professionals. Since many sufferers are diagnosed with depression in the early years, the Psychiatric Physicians is a perfect audience.

We have a long way to go, but thanks to this compassionate and caring doctor, we are starting to make a move.

Activities

Thanks to a dear friend in San Antonio, Sarah Oxford, Frontotemporal Disease Association has been formed as a non profit. Sarah helped to get the paperword completed and filed with the IRS etc. Sarah has been presented with a wonderful opportunity and will be leaving us.....we wish her the best and thank her for all she has done to help get us going.

I have been running very low tech these past few months. Lots going on personally and professionally......so limited time and brain activity after 7pm.

Keep an eye on www.FTDABrainstorm.org we are under construction, but hope to be up and running soon.