Well it has been some time since I was last blogging about our activities. It is hard to believe in just the last few months, our organization has secured an office, produced a charity golf tournament, and hosted a program about FTD for Mind Science Foundation in San Antonio.
It has taken some time to get here, but it is all falling into place.
It is so rewarding when you attend a seminar and doctors come up to you and thank you for making a program like this available. WOW pretty awesome.
We have a long way to go. So much to do...so we will keep pushing forward thanks to so many friends and family.
Everyone that has given money to this organization have help to make this happen. YOU ARE SO APPRECIATED and you are helping to make a difference.
Today would have been my sister Patsy's 62 birthday...still hard for me to believe she passed away at 55 years. So young. I am older than that now.
Thank you all for your emotional and financial support to make this happen.
I plan to get back to blogging...to share my stories and other family stories. Please if you have something to share, share it.
Sharing information about Frontotemporal Dementia; 2 family members suffered from this terrible disease and there was very little information available to us at the time.
Our Mission
* Educate healthcare professionals
* Establish a clinic for FTD sufferers
* Support research
* Establish a clinic for FTD sufferers
* Support research
Showing posts with label FTDABrainstorm. Show all posts
Showing posts with label FTDABrainstorm. Show all posts
Friday, November 4, 2011
Tuesday, June 29, 2010
Going Full Time
Beginning August 1, I will be working full time for Frontotemporal Disease Association. It is a Texas based non profit organization dedicated to educating healthcare professionals and raising research dollars for neurodegenerative diseases.
Our first event was in 2009, we had a table at the Mind Science Foundation meeting "Bursts of Creativity with FTD" in San Antonio. Dr. Bruce Miller from University of California in San Franscisco was there. It was a great event.
Our second official event was the premier of the documentary "Planning For Hope" in Colorado Springs with Dr. Paul Schulz and Dr. Sara Qualls as special speakers for the evening. The silent auction was a big success. Dr. Schultz purchased Patsy's SHOWGIRL on canvas for his new office.
Our third event is arranging for Dr. Schulz to participate in the Texas Society of Psychiatric Physicians annual meeting this fall.
Our first event was in 2009, we had a table at the Mind Science Foundation meeting "Bursts of Creativity with FTD" in San Antonio. Dr. Bruce Miller from University of California in San Franscisco was there. It was a great event.
Our second official event was the premier of the documentary "Planning For Hope" in Colorado Springs with Dr. Paul Schulz and Dr. Sara Qualls as special speakers for the evening. The silent auction was a big success. Dr. Schultz purchased Patsy's SHOWGIRL on canvas for his new office.
Our third event is arranging for Dr. Schulz to participate in the Texas Society of Psychiatric Physicians annual meeting this fall.
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